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Fuller State School and Hospital | | | Disturbed | ![]() |
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Fuller State School and Hospital | | | Disturbed | ![]() |
If, like most institutions, you had little money, you had several choices. You could strap them in so they wouldn't fall out (restraint! Eeeks!), you could lay everyone on the floor on mattresses so when they rolled over they wouldn't have far to go (how callous! How barbaric!), you could make wooden sides for the beds (but then the person in the bed couldn't see anything but the ceiling), or you could go for a large crib which at least offered some way of seeing what went on. I think there would have been equal criticisms had they chosen ANY of these options.
Again, it's easy to be critical of the situation if you aren't aware of the cultural views at the time. People with handicaps were sent away because they were considered "incurable," families were strongly encouraged to leave them behind, the state received very small amounts of money for their care, and the staff were paid outrageously low salaries and were generally treated like grunts. If it wasn't for the group of underpaid but dedicated and caring staff who kept these folks alive, even if they had to fight management and other staff who didn't feel likewise, many of these folks wouldn't be alive today (and there are MANY people still alive today who lived in institutions when they were at their most crowded peaks in the 60s and 70s). There were also courageous families who stood up for their loved ones in these places and fought for more money for better care and for money for community placements because they didn't receive any government assistance if they tried to keep their loved ones at home.
And just try to care at home for a large person with a severe to profound handicapping condition without support from others, and do it day after day after week after month after year. And don't get too comfortable and try to sleep through the night because your loved one DOESN'T understand danger and something terrible could happen if your attention wandered or you slept too soundly. This was not a black and white "institutions = bad, staff = bad, families = bad," but a mixture of what was believed at the time.
I challenge anyone who is critical of what happened back then to have been part of the culture at the time to have acted much differently, especially with the lack of support they would have gotten. This is NOT a defense of how things used to be - they were atrocious - but this IS an attempt to educate people on why it happened so that it doesn't happen again. The budget is getting tighter and institutional budgets are getting squeezed, as are the budgets for community and home programs for folks with disabilities.
I hope all of you who have expressed concern about what you have seen on Motts' site are contacting your local and state governments and asking for increased funding for people with disabilities. Otherwise saying "tut tut" and being outraged about what happened in the past - while ignoring that it is funding that prevents this from happening today in your very own community - means you are also turning a blind eye and are part of the problem.
[OK - sorry - jumping back down off soapbox again.]
On the topic of adult cribs, an interesting item used was the "Utica Crib" - it was a wooden crib that had a lid on top, used for patients who would not stay in bed. It has long since been antiquated, but there are some remaining in museums.
Lynne, I just wanted to say thank you for taking the time to explain stuff like this to us. I've learned so much about institutions from reading your comments--they're always interesting to read and sometimes (as here) make me think about the whole situation in a different light.
sincerly a concerned
wife kara
rk
Seriously, there is a whole lifestyle of Adult Babies (adults who like to wear diapers and dress as babies) who pay LOTS of money for cribs built custom made like the Utica cribs. I mean over a thousand bucks EACH.
Actually, the item pictured above is not a Utica crib. That is just a large standard hospital crib. A Utica crib (named for the place it was designed - the "New York State Lunatic Asylum at Utica") was designed in the 1880s. It was apparently designed for use with manic, agitated patients who needed rest and could not/would stay in their beds to recover. As with most things, it was purportedly developed with the best of intentions, since there were few other options except chains and dungeons, but frankly, I'd take the chains or dungeons over a Utica crib ANY day. [shakes head, sweats, and trembles at the thought]
Even assuming this was the reason it was initially designed, it quickly became seen as an effective way to keep violent or manic patients restrained without using chains, and that was a good PR ploy back then. Because the main way (only way?) of containing people with mental illness up until then had been to chain them to the wall or bed, hospitals fought to look more humane and compassionate, and wanted alternatives to chaining people up. That's where the straightjackets came from. The hospitals were very proud that they could use a straightjacket on a patient, which kept them from hurting themselves and others, yet many still had the freedom to walk around. Hospitals with 1/2 their clientele in straightjackets called themselves "restraint-free", and I suppose compared with chaining them to the wall it IS a step up. Sort of . . . kinda sorta . . .
http://www.uihealthcare.com/dep...stik/utica.html
http://www.indiana.edu/%7Emedhist/dwyer.htm
Also, check out the interesting comments about the Utica crib here:
http://www.omh.state.ny.us/omh...archive.htm
http://www.sleepsafebed.com/
well my son is coming along good.. we just had his centeral line removed this week... and last feb (he was born on the 14th :) ) he started pre-school at age 3. he gets vision, PT, OT,Speach, 2 Sped Ed teachers.. thats from the school and then we also take him to PT,OT and speach (private clinics) he gets home schooling due to his still suppresed immune system
its sorta like someone hit the reset button on him, he is about a year to 18 months behind his age group.. but he is learning quickly... the only thing slowing his process down is that he is blind..
Dlbeaney@yahoo.com
The traditional medical beds, the sides are too low. He's able to sit up, lean over and fall out.
But I do get some good idea's for the carpenter! That's all the matters right? He's gets the beautfiul bed that I envision. :)
While scrolling I've now seen your link and will certainly using the pics to design my foster sons brand new bed! I'm thrilled!
:)
Eve and THRiLL KiLL, here is a great resource for parents who have family members with disabilities:
http://www.eparent.com/
I think these things rock! I just got one a few months ago. I am an adult baby, and I have never felt so secure, you have no idea. I am tellin ya, you need to try one out!
Sad, But true. I had an Aunt who worked in a Mental Institute
(early 60's) and even with "modern treatment techniques"
it was a heart wrenching experience even at the best of times...
He is strong as an Ox and the strongest caregiver that we had hired is barely able to pry him from the safety rails or anything else he has a grip on.
When he was 59 he ran The Paul Mason Marathon and continued running 6 to 8 years after that. He worked at United Technologies Center "UTC") which is now "Chemical Systems Division". I did a search for the keywords "Parkinsons" and "UTC" on the search engines and found that a great deal of the results were obituaries. The links took me to the obituaries where they went on about the gentlemen and women that worked at UTC and they had died from Parkinsons disease. Coincidence? Probably not since it seems that "Perchlorate" is linked to Parkinsons. I just wanted to bring some reason to light pertaining to these types of restraint beds. If my Father was able to get out of bed at night we would surely be going to the emergency room that same night for a concusion, broken ribs, neck or some other "grave" condition as a result of not taking the necessary precautions using a bed or restraint belt similar to something like what you see. The last time we let him walk alone he broke three ribs and went to the emergency room and had to stay in the hospital for three days. That's alot of money even if it is a co-pay not to mention that it has to be painful. The three previous times he was left to walk or unrestrained he needed stitches over the eye and it swole up like a golfball all three times. Leaving him unrestrained would be as silly as a race car driver with no seatbelt or helmut. Necessary precautions are taken for the activity and its surroundings taking place. My Father was in the Navy for 22 years and taught physics while there and set up helicopter schools all over the United States. He is alive as I write, LOVES chocolate cake, ice cream, peanuts and calling anyone who thinks they have authority "Montgomery Ward". He has a great sense of humor, laughs and cracks jokes daily and wouldn't be enjoying these things were it not for safety restraints. The have a bed called "SomaSafe Enclosure" http://www.vivaxmedica...omasafeenclosure.htm which is less intimidating for those that are faint of heart and haven't seen "The Big Picture".
Until you have ben faced with taking care of someone 24 hours a day of course you wouldn't be able to see "What we were thinking" and hopefully or not) you know know that it is out of Love and that we are not "Satanists". Besides, the 12 disciples of Christ are really not physical manifestations at all, they are our emotions.
Thanks, also, for the great reference for the "SomaSafe Enclosure" bed. I am always looking for new adaptive equipment to try out to make life easier for our folks. :-)
Way to go! Thank you for sharing!
"Besides, the 12 disciples of Christ are really not physical manifestations at all, they are our emotions."
You two are double cool!
Though I am not Religious I have enlightened myself that the Bible may be a handbook for mental awareness. The many disciples if you look at them could conceivably be personalities within us. Their is the bad disciple that betrayed Jesus and John the Baptist which was the Faithful persona etcetera... The Devil just may be the bad guy in us. Heaven is a thought away and so is Hell. It's all a matter of perspective in my bookno pun)!
If you look at any of the writings in the Bible you very well could establish that many if not every situation that had taken place could be perceived in our real life happenings in this day and age. I think that whoever wrote the Bible had a dep understanding of the human psych and was a great story teller. I believe Heaven and Hel are right here right now on Earth and each individual is capable of living in one or the other. The "Almighty" is just that, the Almighty. The unseen force that is ultimately decisive about just what you are capable of. The useen force that drives your being. GOD. Then that would make each and every one of us Jesus. The children of God. The child of the Almighty. Maybe a far stretch but it works for me. That's not to say that there is not an afterlife and that a real being such as God exists. I just can't see us all in this universe being as intelligent as we are without some great force having brought us about. And if there wasn't a God to begin with, with our capabilities who's to say that we haven't created one that could exist now? Who knows, but what a great story. Onto the bed enclosures I have found the link I was looking for, here tis' http://store.devinemedical.us/8003g.html
http://store.devinemedical.us/bed-canopy.html
Vaya Con Dios !~
Thank you.
http://www.consumermed...om/Convalescent.html
http://www.seekwellnes...evention/devices.htm
http://www.bedmonitors..._alarm_equipment.htm
http://www.techforltc....e=11&careissue=1
restraints, they're sent away & at the flip of
a coin it is weather you're free or restrained
to a bed, being an eternal prisoner.
please write an E-mail to me reguarding this.
My daughter, who has cerebral palsy, has grown out of her crib, but can wiggle past normal bedrails. The Sleep Safe bed is exactly what we need for her!
I have been a longtime luker on these boards and have read many of your posts and have to applaud you and sadly agree with you. My grandmother suffered from senile dementia for about 5 yrs prior to her death( she had also had ongoing psychatric issues due to childhood abandonment) and my parents and cared for her at home, because at that time we had the health and the resources to do so. Now this was a little 80 lb 4'11 woman, but in her dementia she had it in her head that she could walk and tried to get out of bed, injuring herself, so to our sadness we had to basically enclose the bed. Seeing this picture brings that back with poingnat intensity, but even dealing with this for a short period of time, I can sometimes see why it had to be done.
All I can hope is that those who were residents/patients here are either at peace or living better-quality lives, and that they are rememberd.
CF
Nice to meet you btw
On July 13, 2006 a message posted by ABgirl mentionned that she got one crib like the one that is shown. I wonder were she was able to have one. More info about suplliers would be great or if it possible to contact ABGirl to know more about it would be great.
I also share in educating people about the caregiving situation. I feel so strongly about keeping loved ones home no matter the reason. I purposely work from home as an entrepreneur owning my own computer business just so I can care for sick friends or anyone who needs me. I do it for free because I hate institutions so much. I've seen unspeakable things occur in institutions--things that would cause someone not to sleep for years. Check out my blog at www.keepthemhome.blogspot.com. There, i try to educate even the most perplexed of individuals so they will not use not knowing what to do as an excuse to throw away their loved ones in an institution.
I disagree with institutions for any reason. I've cared for grown men with the minds of babies. There are ways to handle it when they act out and things like that. I guess, some who are ignorant would not know what to do and just throw them away as if they were disposable. I don't know about you: but, even if I did not know something, I'd fight to do the right thing--I'd research, ask questions to anyone I could not caring if they got mad at me, I'd be dedicated, and do what I could to keep that person home with me.
As for the subject on wanting to find an adult crib as some have inquired about here, I'd like to direct you to soe sites where you can order them.
The first site is at www.babyapparels.com/ I believe this was originally made for the craz people called adult babies: however, you can get cribs and changing tables for those who are disabled. When I inquired about the furnature, they were very nice and polite. They are worth doing business with. It's great that there is a company like this so the disabled can still stay at hoe. I've told many about this option so they will not throw loved ones in some sort of home.
The next site is at www.shilog.com and is a medical wholeseller. The biggest crib that can be purchased there is a youth crib that is seventy-two inches long. This could fit a grown woman if she is not extremely tall. Possibly of about five/four or five/five.
I hope i've helped.
By: me The creepiest thing is how this site that I find so educating and artistic deteriorates into blurbs about peoples's sexual fetishes and torture fantasies, THAT's the creepiest part - sorry.
No need to apologize, you are not alone.
I do think it is way cool though that a few people who really needed a resource found it here and were able to find information and had some enlightening stories to tell. I hope they come back to see all of Mr Motts awesome photography too!
Of course if they saw the "
By: diaper lover i wear diapers and love sleeping in a crib yet i have little money and was wondering if their was anywher i could find a crib for low cost?"
they may have pushed their chair back from the PC and said "WOW that was one wierd site"....LOL
It proves to show you that people are trying to understand adult cribs and their use. I just published an article on Associated Content titled; "A Safe and humane Way to Contain Your Mentally Challenged Loved One". Many found it to be quite helpful. Feel free to go to the site at www.associatedcontent.com and type that title in the search box if you'd like to see it. Perhaps, you could tell me if I could add some things. I'm thinking of making a series on the whole thing to serve as a helpful resource for caregivers. Take care.
Feel free to contact me if you'd like. My email is at waldorfpc@gmail.com. It is my business email: so its checked regularly. I hope to hear from you
Thanks, I'll be here all week.
sorry I only only mention mental illness. I have a rare one so I felt I could speak intelligently on the subject with at least a bit of copability
B
its was all over it was like she was not in her body anymore so sad//
it like dam one minut sec and its all over every thing you know is gone
I work in a group home and have one for a lady who is dually diagnosed with profound mental retardation and OCD. She has CP and cannot stand independently. She is older and has osteoporosis. She tries to get out of bed independently on impulse(due to the OCD) and has fallen and at one point pulled a dresser over on herself.
The SleepSafeR bed is the best thing we ever bought for her. We can elevate the head of the bed to address her GERD and breathing issues and she sleeps well through the night. The staff do 2 hour bed checks and even when she is awake at night, we don't have to worry about her falling out of bed onto the concrete floor.
There is a lady in another group home who also has an adult crib ("Hard" brand manufacturers, I think they are in Buffalo, NY). She is also profoundly retarded with a seizure disorder. She also has severe osteoporosis. She has stood up in bed in the past and fallen to the floor during a seizure and broken her arm. The adult crib is restrictive, it's true, but until we get funding for one-on-one round-the- clock care for profoundly /multiply handicapped adults, this is the kindest,safest thing we can do.
The beds are fabulously expensive and Medicaid pays so little that the local vendors won't even submit them for review. I don't know about private insurance, but if you can justify the use of an adult crib for medical reasons, you may stand a chance for partial reimbursement.
Yolanda,good luck...you are a saint!