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Pennhurst State School | | | Forgotten | ![]() |
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Pennhurst State School | | | Forgotten | ![]() |
It's good to point out how bad things used to be, but the pointing needs to include another hand *in the present* reaching out to include these folks.
[Ack! Sorry! This must be my "moral indignation" day! I need to jump down off my soapbox before someone pushes me off real hard!
Interesting that it's "politically correct" images.
Guess if it's a picture in an institution it must automatically be evil, since all institutions are evil. Black and white. Right and wrong. Good and bad. Everything or nothing. Hang-dang those shades of gray because they make people think through the issues, and that seems to be a lot to ask.
Replace "this" with "these", add an "s" to picture, and apply it to the entire site, and you have a truth that applies to most, if not all of the user comments.
But then, it wouldn't sound like everyone who worked here sucked and the place sucked, would it? It would sound like the artist was open-minded and cared about people who use wheelchairs for transportation. So I guess we can rub out THAT particular explanation and look for one that describes the place as a true hellhole with no socially redeeming values at all and everyone who ever worked here as a sadistic maniac who hated people who use wheelchairs. That would certainly fit with people's fondest wishes and hopes, it seems. Geez, the first little girl is pretty faded too, but I don't see anyone getting all sentimental and pitiful about discrimination against Caucasian girls with black hair who wear red skirts and how she is placed "all alone" in front of the other children.
Look at YOUR biases, people, because a lot of y'all are surely projecting them here.
And that, my dear friends, was professional analysis totally free of charge. And worth every penny of it, to boot! :-)
just a thought...
First of all why are all the normal kids looking away from the viewer? Doesn't that seem strange?
Secondly why is the girl in the wheelchair hidden in the back and so very faded out? It's like she's a ghost. If someone else hadn't mentioned her I wouldn't have seen her.
Finally what the hell was wrong with the person who drew this? Look at the eyes, they are non-exsistant; just gaping black holes where the eyes should be.
Whoever painted these needed to get their head checked ASAP.
Those poor children in this room--I bet there was a high suicide rate among them as they got older.
Secondly..I would like to let you know that her uncle (after being released from Pennhurst) didnt know how to read, write, walk, eat, or even go to the bathroom on his own. I can tell you honestly that he learned all of that from her grandmother when he was released. He informed us about how he was mistreated and abused. And was even put in a isolation room, sitting in his own waste, on a few occasions.
Up to the time of his death he was still afraid of people's touch. When a person came into their house that he didnt know..he would cowar and fall silent because of the tourture of Pennhurst.
I agree with you Lynne...In the sense that, yes, in these years people dont mistreat their patients. But I would like you to start thinking of what it was like then. You have stood on your soapbox and compared it to your experiences but what you must realize is that your experiences are not back in the times of Pennhurst.. when people were still ignorant to the disabled.
I know for a fact that people were abused here..from my friend's uncle. I wasnt entirely sure until now...but now i know.. and I thought that maybe someone should step up on their soapbox and try to enlighten you a little bit...
I hope you haven't for one second read my comments to mean that there wasn't abuse back then and that there isn't abuse now. As in right now today. Both in large facilities and in the community.
My point is and has always been that people shouldn't make assumptions about what they have read or heard, because they'll never get all the info and because the info is slanted to whichever of us is relaying it to you - whether that's me or whether it's someone else. I am asking you to look at a lot of different people's experiences, remember that this was a different place and time, remember that we shouldn't be single-handedly blaming staff or families or the people who lived here or the doctors or the legislators but look at the culture that created and accepted this. That was all of us, including me. Don't judge yesterday's actions by today's standards. Don't assume that people always did what they did because there was a vendetta or personal dislike or there was ill intent.
Let me say it again - conditions were terrible at times in many of these places. In some places they were rotten. In some places they were horrible. However, the sad irony is that people who ran these places were well aware of it at the time and constantly asked for help (i.e., more money) but didn't get it. I can show you state publications from the 1950s with the states actually documenting and showing how bad their facilities were with full page photos of putting two children in one crib in a room full of 45 cribs, and 1/2 a dozen of the cribs had two children because there weren't enough beds. The facilities sent yearly reports to their legislatures showing how decayed the facilities were, how overcrowded they were, how little money they had for the basics, and still nothing happened until the courts got involved in the 1970s and forced the states to start putting money out for these people.
http://i47.photobucket.com/albums/f152/docarelle/1955.jpg
So yes, bad things happened.
Let me say it again. Bad things happened. No one can deny it and no one wants to deny it.
But it seems that many folks are looking for someone to blame rather than trying to understand the whys and wherefores of what happened back then. Because what I am (apparently unsuccessfully) trying to impress on people is that we are three inches away from this happening again. Unless people understand how things got so screwed up in the first place, it can and will happen again.
But people need to stop pretending that the problems only occurred in another era and were the result of bad people rather than the result of a combination of bad circumstances. It was the result of bad systems and a culture with different priorities. As soon as the voters get a pinched belt they start voting against the type of programs that keep people at home and in the community where they belong, and push them back to (cheaper) congregate living facilities because that's what happens when budgets are tight and when people don't understand that you and I are the people who control the legislature that control the budget that dictates how these people will live.
I am saying let's quit chucking stones at the staff who worked here and start figuring this out so we can make life right for these folks. I don't think that's a lot to ask.
Jodi, I am not "good" and I am surely not "pure" - I'm not even on the "cleaner" side of life, all sins being totaled and added together over the years. But I do try to look at everyone's life. Not just the people who lived here but the people who worked here and who kept these folks alive. If you aren't old enough yet to know what it's like to have a very low paying job, extremely long hours, a family to take care of, last minute mandatory overtime shifts, 25 to 50+ people to take care of by yourself who have skills at the 1 to 2 year developmental level plus massive behavioral "challenges," minimal support from professional or administrative staff, and a public who, like you, blames them for all the bad stuff that happened and doesn't think to thank them for showing up to do the work that many families were not capable of doing because they didn't also have the resources, then we'll have to wait a few years until you gain the life experiences that will help you understand why this might be a rather stressful job.
If I put you in a room today by yourself with 25 people who have severe to profound intellectual disabilities and ask you to make sure they are all kept clean, well dressed (or even make sure that each of them remains totally dressed for your entire shift), provide even just one meal (making sure the area is kept clean yet no gloves or cleaning solutions can be ingested, making sure the temperature of each food and beverage is in the correct range, follow everyone's eating precaution plans, make sure everyone is seated properly, their adaptive equipment for dining is available, and that their food texture is correct - i.e., pureed vs. ground vs. chopped vs. whole, making sure they all have the correct diet and the correct amount of food, possibly even having to assist people who receive their nutrition enterally), deal with seizures, deal with the multiple minor injuries that will occur because many of the folks don't have the ability to walk without falling, keep the area safe from those who ingest literally anything that is small enough to fit in their mouth, make sure that those who smear feces are cleaned up (because this sometimes occurs at this developmental level), keep apart those folks who don't like each other so they don't get into yet another fight, and then deal with the mounds of paperwork required to document that you have done all this work while keeping a cheerful face and all your patience, then you are certainly a better human being than I am or frankly than almost any person I have ever met.
Those were the conditions at the time. Them's the facts. And other than the fact that our staffing ratios are much better today, them's still the facts. You keep your head about you with all that going on and don't crumble from the strain (especially given that often the true ratio was more like 1 staff to 50 individuals) and I will personally ask the Pope to make you a living saint.
It's easy to criticize others if you haven't done their work. I personally thank God every day for the great majority of the staff I have the pleasure of working with, and I am 1000% positive if you ever got out there and saw what a very difficult job this is you would have just a little bit more empathy for the people who did this and kept your uncle alive so that you are now able to come here and condemn them.
We are biased in the fact that since Jodi's uncle was in this hospital and beaten..then we feel that it was the government and the staff's fault.
Its obvious we arent going to see eye to eye on this matter...there are too many emotions involved.
I see where you are coming from..but I also stand firm in my opinion.
I dont want to keep coming on here and fighting...So I say lets agree to disagree...
Hello, everyone. Guess what? I am going to clue you in on a little secret that I apparently have forgotten to mention here and everywhere else on this site where I have written. There was abuse at these places. Documented abuse. Photographed abuse. Tape recorded abuse. At this place and every other place out there. Including places in your neighborhood. Including this very week. No gasps of horror or outrage please, I can even prove it. I have even seen it.
Now, where were we?
Oh yes:
1. If society doesn't value certain people;
2. And they are sent away where no one can see them because they are of "less value";
3. And society doesn't pay much money for their care;
4. And they pay staff minimum wages to work with them;
5. And they make these staff work long hours and lots of mandatory overtime;
6. And if they don't have the technology to provide habilitative care (which wasn't even developed until the last 50 years);
7. And people treat the caretakers poorly because society doesn't value their charges (who were sent away due to their low value to society, mind you);
8. And the administration, being horribly overwhelmed with hideous amounts of overtime pay to keep the place running because no one wants to work there in the first place because of all the above factors, sometimes retains staff who are known to be abusive because otherwise there will be even fewer staff there (and they then end up between a rock and a hard place deciding whether to keep the abusive staff because otherwise, by firing the bad staff, the staffing ratios will then drop to 1 staff to 100 individuals);
9. And residing there are a large number of people with poor to minimal social skills who are at the developmental level where the highest rate of abuse occurs in the "normal" community;
10. And abuse occurs;
11. And you are shocked and blame it on the people who worked here with all this going on;
12. Then you are a knucklehead.
There were plenty of staff who worked here who did a lovely job under these circumstances. I don't hear anyone commending them, ironically. Everyone would rather poke at the staff who failed under such bad situations. But if you want to blame the people who were put in this situation and failed because they were human, you are missing the thing that will keep this from happening again.
And that is the real tragedy.
Not your individual story about the uncle. That is sad. That shouldn't have happened. It is a very bad thing that occurred.
But it will occur again and again and again until someone who votes starts to understand WHY it occurred. It occurred because we, the people, set up the horrible, terrible conditions under which many good people failed.
If you have a large facility that has adequate funding, a supportive administration, excellent technology, involved professionals, and well paid staff, the amount of abuse goes down to where it is significantly less than seen in the community. So that tells me that abuse is not inherent in people, it is inherent in bad conditions.
Did you know that when people are poor and hungry and have sick children and have few options they are more likely to steal? That's not a shocker, is it? So why is it a shocker to anyone that under bad situations staff are more prone to do bad things? Why chuck stones at the people who worked under these conditions and not the system and culture that engendered these situations?
I don't know. Maybe getting old enables people to see the wider side of life and circumstances. I was young once and things were a lot more black and white. But they were never so black and white that I didn't try to look at everything before I chucked a rock at it.
Staff who hurt people should not continue to work with them. Situations that engender abuse need to be fixed. But if you continue to insist that the evil lies only within the PERSON and not within the SYSTEM, you have condemned everyone else to the same fate as the uncle.
And that is a shame for the rest of the people out there that everyone claims to care about.
I'm on no one's side, but I see both. some institutes would be worse than others. Some would start off great, but go down hill.
One factor was probably funding, which resultied in staffing, care, and a million other problems.
Plus, back then (and even now) sometimes 'retarded' people are disreguarded, and disliked.
Personally, I like this photo. Perhaps the artist wanted to give the children something to dream about, or imagine. Perhaps a caring staff emember paid the artist out of their own miniscule wages to have something happy in what they knew were bad conditions.
Maybe it showed there is good, happy things.
Or maybe it was installed to make the children yearn.
I doubt the latter, but still.
It is amazing what a simple photograph can instill in us.
oh, and was there any criminally insane here? Because abuse (intentional or unintentional) cna go two ways occasionally.
No one is perfect. And no one should expect anyone to be.
Accidents happen, even now, in hospitals. not that staff means to do it, but it happens. I should know. My dad got injected the wrong thing and almost died, but the crash team or whatever saved him.
It was no one's fault, the nurse immediatly got help, so no harm was done. I cannot remember if she was punished or not.
But there have been others who go out of their way to help patients.
So no one should be bad mouthing anyone. There is always bad apples, and maybe we should all concentrate on the good and not the bad.
At least that is from my opinion.
I wasn't even alive when this thing was open, I don't think anyway.
....
However, the truth is that there were (and still are) a number of families who don't have the resources and/or the willingness to take care of family members with these types of severe disabilities. Therefore, we end up with a system where human care is brokeraged and some people actually expect that we can pay people to care about other people and keep them as safe as they would take care of a member of their own family.
There are some families with children with disabilities who keep their children at home who abuse their children because they are also short on resources, and I don't see as much concern over those folks harming their own children as I do the upset that I am hearing about total strangers who were ill-trained and paid poorly who hurt people. I think that is kind of weird, myself. If it happens in a person's own natural home, are we shocked it would happen where there are no blood ties?
But is it the families' fault here? Am I tossing bricks at Jodi's family for sending her uncle away and not taking care of him at home or not visiting him and asking whether he was doing well or whether he needed anything or observing how he interacted with staff? No, that wasn't done then. No one seems to catch that side of it either.
Everyone threw the problem in the air and expected the state to take care of everything, but few people ever got involved or helped support the places, either by visiting often, by getting involved, or by insisting that money came the way of these places.
So when that ended up causing a nightmare situation and we now see what we caused in our folly and we pick out the individual staff who were caught up in this nightmarish system and who failed and we poke them in the eye with a sharp stick, I am always a little surprised and saddened.
What do I think about people who harm people who have severe disabilities? I hate to admit it, but I never automatically condemn them without first trying to figure out why it happened. I make DAMN sure they are immediately away from the person they injured, but if it turns out there was a systems error, then it is my job to fix it to make sure it doesn't happen again. I work at the systems level because I am concerned about more than just Jodi's uncle. It was bad what happened to him, but I want to make sure there are no more people who are treated like Jodi's uncle, and I can't accomplish that if I get mired down in one case because there are a myriad of reasons why things like this occur. I am not simplistic enough to believe that there is only one factor at work here and that this factor is human evil.
Get rid of bad people. Yes. Do that immediately (IF the state allows you that luxury by the staff protection laws that are sometimes damned tricky to negotiate). Any time I see or suspect abuse or neglect I work and work and work until the situation is resolved. That has not always won me friends or helped me influence people positively, as I am sure you can personally attest. But don't for a minute believe that the evil was just in one person because then you are leaving all the other folks open to abuse because the system will be just as bad if you don't get to the ROOT of the problem.
I say, kill all the cockroaches you see. That is a good thing. But if you don't get to the heart of the problem and kill them where they are hiding and breeding, all you've gotten rid of is one cockroach. I would rather see the whole nest taken out. A proactive stance is ALWAYS more effective than a reactive stance.
As regards peoples' personal experiences who lived at the different facilities, I have worked at 5 different facilities and I have seen and heard all manner of opinions from people after they have left. Some folks loved it, some hated it, some were neutral. I have found that if the group gets together and someone starts to speak up pro or con, the group tends to go along with whichever view is stated because the truth is that there was both good and bad at these places. I think, however, that if you get a group of people who did not live in large facilities and get them all together to talk about their childhood and their lives and the towns and families they grew up in, you'll also find a lot of positive and negative. That's part and parcel of being human. Some homes and families were great and some really sucked.
I do think everyone should grow up in their own home and with their own family, assuming the resources are there and they are treated well. But I don't get to make that choice. I just try to deal with it after the families and state and systems have made that choice, and I try to make a difference in the systems and the state so that more people can live at home and so that the families have the resources they need and so the people who live in the facility where I work are safe and get everything they need as long as they live there. I also come to sites like this and try to provide information about what these places were like and are like, both the good side and the bad side. That may be a very small piece of the universe, but at this point it's as far as I can stretch myself.
lynne thanks for using some effort in your writing even tho they may be rants to show me that we are all fighting over the same thing...
=) you made me blush haha
Please see below all comments:
" Memories and stories from past employees, visitors or patients are gratefully welcomed, they help keep these places alive!" Also please note about flaming. Thank you for your consideration of the site rules.
So: I want to know.. Is that dark boy holding his hand on the white boys arse?
However, (having worked and been a patient at multiple facilities) I have a problem with a few of your arguments.
Staff working in the mental health are underpaid. Many of them must work overtime. Most of them have lives and families outside of work, and the stress that accompanies these lives. It is also very difficult to keep up with specific treatment plans/special needs etc... when you are in charge of multiple patients.
However, there is a major difference between the plight of mental health workers and the plight of patients; I feel as if sometimes you do not recognize this (in fact, you seem to use the plight of workers as a justification for bad actions/decisions/abuse).
One of the major differences between staff and patients is that staff CHOOSE to work in the psychiatric field; Patients do not always choose to be hospitallized. If a staff member does not like the conditions of the job, they have a choice to leave and seek other employment. Hell, they could work at McDonald and recieve the same rate they were making working on a unit or at a residential program. There is no need for them to subject themselves indefinately to a job that is too stressful.
The patients can not leave. If they don't like conditions on a hospital unit, they have few options.
Staff are supposidly sane, functioning members of society. Patients are not necessarily in control of their behavior. Staff can choose, to the best of their abillities, how to act/react to situations reguarding patient care.
I don't know, said my bit. Sorry. I should not have gotten in the middle I am sure..
Tried has had a few bad experiences and suddenly all mental health employees should go work at McDonalds because the pay is the same. Right… that’s a plan that will make the world a better place…
I realise that some folks quite enjoy being spooked and scared and "creeped out" whilst others seem to almost romaticise the darker side of humanity. I tend to accept its existence, that it does exist and do whatever I can to counter that darkness and encourage light.
Might be my age here (like Lynne...dirt came after me) but I've learned to look at the entirety of an issue. Lynne has said it far better than I ever could and she's spot on with respect to *US* bearing a great deal of responsibility for some of these issues. Funding matters hugely. And with sufficient funding, those who would abuse and denigrate could be replaced so fast their heads would swim.
I'm an American who now lives in a European country and some of the differences I see with respect to health care in general and care for the disabled (mentally/physically) and the *attitude* is astounding. There is a sense here of responsibility for caring for those who do not have what "we" do and I am quite glad to see that.
Good on ya, Lynne and all the others who do that which so many of us could not begin to do. And keep on "preaching" because there are entirely too many who still aren't hearing.
DAH
Could you please e-mail me @ celticrose1976_28@hotmail.com
I'd like to discuss volunteer opportunities for those of us who have a mental illness( medication compliant and getting stabilized).
Thanks
Mags
just saying...
(Cue theramin!)